Updates

here is an update on baby thatcher:

Update from 2/15 after Pediatric Neurologist consult:

The majority of today was a waiting game.  This morning we met with the maternal fetal medicine surgeon (the same doctor who brought us the MRI results last night) to make sure we understood what information was given last night and to answer any questions we had.  There weren't any new developments, or a change to his prognosis.  The positives out of the meeting were he admitted it's his job to give us a worst case scenario picture, and Thatcher not making it to delivery or only living a few hours is our worst case scenario.  Also, he agreed with us that Thatcher's movements and his "breathing practice" were good signs of some basic functions.  This afternoon we met with the pediatric neurologist who essentially had the same diagnosis, major atrophy to Thatcher's gray and white brain tissue resulting in hydrocephalus exvacuo (enlarged ventricles) but a much improved prognosis.  She couldn't give us a life expectancy, put a cap as to how long he might live.  She did say he will be in an infantile state for the duration of his life.  He will struggle with mental retardation, seizures, movement ability and control, ability to chew, to go the restroom, to sit, to walk among many other challenges.  BUT that's not what today was about, the things Thatcher won't be able to do.  Today was full of peace, of a renewal of our spirits, revelations of God's goodness, and full of evidence of God's miracles both big and small.  We have prayed from the beginning of this pregnancy that God would use Thatcher in a big way to bring glory to His name.  Today, God used Thatcher to bring people together from all over the US to The Netherlands, Africa, China, Greece, and Australia to look to Him in prayer.  A baby who they've told us will not develop past infancy has done more for the Kingdom of God before he is even born than his two parents have ever done!  Praise God! We are more convinced than ever that He is using our child to bring glory to His name and will continue to do so in a big way.  We are continuing to trust in Him, our Creator and Perfecter of life.  We know He can heal and we believe He will heal His child, our sweet baby Thatcher. Thank you all for your prayers, stories of healing, and encouraging words.  We are so humbled and blessed by the out-pouring of love from our brothers and sisters in Christ Jesus.  We only ask that you continue to go to God with expectancy of Him healing sweet Thatcher in accordance to His will. 

for the best updates on susie, please follow their ministry blog. i know that susie is meeting with several doctors today to come up with a plan. 

please continue to pray for both of these families. my heart is so heavy, but when i stop to pray i feel that burden start to lighten up. i know that God is in control of both of these situations!!!

thanks!

blessings, ALo